Aims:

To perform clinical and epidemiological studies in the field of HAN and of CIF. 

To provide guidelines for HAN and for CIF. 

To participate in the education of professionals with an interest in HAN and CIF.

Composition of the group:

Core Composition:

•         a maximum of 10 members, from National PEN Societies participating to the ESPEN Council

•         the group is multidisciplinary, members are selected among pharmacists, nurses, dieticians and doctors

Composition at large:

•         any ESPEN member who proposes a study, after approval of the protocol by the group, became part of the group until the end of the study

Presentation of the works of HAN & CIF:

The coordinator of the study is normally the first author of the publication. 

Those who contributed to the study are thanked in the "acknowledgements" section. 

Papers are submitted to the ESPEN meetings and Clinical Nutrition or other relevant journals.

Meetings of the HAN & CIF group:

The group convenes for two meetings every year. The winter meeting is held during a week-end in January or February in a city of one of the members.

The second meeting takes place during the ESPEN meeting in August or September.

An open meeting is organized when appropriate during the ESPEN congress in order to give delegates the opportunity to learn about the activities of the group. The information on the web site is adjusted at half-year intervals or when appropriate.

Renewal of the group:

Members of the group must be replaced continuously in order to assure the continuity of the group. Duration of the membership is normally 3-4 years.

Proposition of new members will be based on common sense in order to maintain the multinational and multidisciplinary composition of the group.

Members must fulfill the following criteria:

• Member of ESPEN 
• Enthusiastic to participate in the work of the group
• Expertise in the field of HAN and/or CIF
• Members must be approved by their national PEN society 
• A list of the members of the HAN & CIF group will be submitted to ESPEN Central each year

Financial support:

ESPEN provides financial support. The budget has to be accepted by ESPEN Central. All expenses must be clearly defined (meetings, secretariat, mailing etc.).

Members of HAN & CIF group are encouraged to generate financial support from pharmaceuticals companies or other societies. The ESPEN treasurer will control the budget.

Home Parenteral Nutrition Book - 2nd edition    

Containing contributions from leading international experts and under the auspices of the ESPEN HAN Group, this book explores the life-saving treatment of home parenteral nutrition. It covers the complete scenario of home parenteral nutrition (HPN), from its prevalence in different continents to clinical indications and the practical aspects of its management. Topics covered inlcude the growing use of HPN, scientific and practical issues associated with HPN in adults and the pediatric population, indications and outcomes in various diseases, complications, nutrient requirements, preparation and administration of the admixtures, monitoring of patients, medical and surgical alternatives, ethics and legislation, and quality of life. To order it, click here.

ESPEN LLL-course on Home Parenteral Nutrition in Adults

The group actively contributes to the ESPEN LLL program by delivering the course on HPN in adults.

Acknowledgments

The group has been awarded with the “ESPEN RESEARCH NETWORK GRANT” 2009 for the project: “An international study of the quality of life of adult patients treated with home parenteral nutrition (HPN)”, presented by Janet Baxter.

 

Publications    

Cuerda C, Joly F, Corcos O, Concejo J, Puiggrós C, Gil C, Pironi L; HAH-CIF ESPEN Group. Prospective study of catheter-related central vein thrombosis in home parenteral nutrition patients with benign disease using serial venous Doppler ultrasound. Clin Nutr. 2015 Jan 23. [Epub ahead of print]

Pironi L, Arends J, Baxter J, Bozzetti F, Peláez RB, Cuerda C, Forbes A, Gabe S, Gillanders L, Holst M, Jeppesen PB, Joly F, Kelly D, Klek S, Irtun Ø, Olde Damink SW, Panisic M, Rasmussen HH, Staun M, Szczepanek K, Van Gossum A, Wanten G, Schneider SM, Shaffer J; Home Artificial Nutrition & Chronic Intestinal Failure and the Acute Intestinal Failure Special Interest Groups of ESPEN. ESPEN endorsed recommendations. Definition and classification of intestinal failure in adults. Clin Nutr. 2015 Apr;34(2):171-80.

Dreesen M, Pironi L, Wanten G, Szczepanek K, Foulon V, Willems L, Gillanders L, Joly F, Cuerda C, Van Gossum A. Outcome Indicators for Home Parenteral Nutrition (HPN) Care: Point of View From Adult Patients With Benign Disease. JPEN J Parenter Enteral Nutr. 2014 Jun 10 [Epub ahead of print]

Van Gossum A, Pironi L, Messing B, Moreno C, Colecchia A, D'Errico A, Demetter P, De Gos F, Cazals-Halem D, Joly F. Transient Elastography (FibroScan) Is Not Correlated With Liver Fibrosis but With Cholestasis in Patients With Long-Term Home Parenteral Nutrition. JPEN J Parenter Enteral Nutr. 2014 Jun 9. [Epub ahead of print]

Bozzetti F, Santarpia L, Pironi L, Thul P, Klek S, Gavazzi C, Tinivella M, Joly F, Jonkers C, Baxter J, Gramlich L, Chicharro L, Staun M, Van Gossum A, Lo Vullo S, Mariani L. The prognosis of incurable cachectic cancer patients on home parenteral nutrition: a multi-centre observational study with prospective follow-up of 414 patients. Ann Oncol. 2014 Feb;25(2):487-93.

Dreesen M, Foulon V, Hiele M, Vanhaecht K, De Pourcq L, Pironi L, Van Gossum A, Arends J, Cuerda C, Thul P, Bozzetti F, Willems L. Quality of care for cancer patients on home parenteral nutrition: development of key interventions and outcome indicators using a two-round Delphi approach. Support Care Cancer. 2013 May;21(5):1373-81.

Pironi L, Baxter JP, Lauro A, Guidetti M, Agostini F, Zanfi C, Pinna AD. Assessment of quality of life on home parenteral nutrition and after intestinal transplantation using treatment-specific questionnaires. Am J Transplant. 2012 Dec;12 Suppl 4:S60-6.

Baxter JP, Gillanders L, Angstmann K, Staun M, O’Hanlon C, Smith T, Joly F, Thul P, Jonkers C, Wanten G, Gardiner K, Klek S, Cuerda C, Magambo W, Hawthorne AB, Lukes A, Van Gossum A, Theilla M, Singer P, Shamir R, Pironi L. Home parenteral nutrition: An international benchmarking exercise. E-SPEN Journal 7 (2012) e211-e214

Pironi L, Goulet O, Buchman A, Messing B, Gabe S, Candusso M, Bond G, Gupte G, Pertkiewicz M, Steiger E, Forbes A, Van Gossum A, Pinna AD; Home Artificial Nutrition and Chronic Intestinal Failure Working Group of ESPEN. Outcome on home parenteral nutrition for benign intestinal failure: a review of the literature and benchmarking with the European prospective survey of ESPEN. Clin Nutr. 2012 Dec;31(6):831-45.

Dreesen M, Foulon V, Vanhaecht K, Hiele M, De Pourcq L, Pironi L, Van Gossum A, Wanten G, Baxter JP, Joly F, Cuerda C, Willems L. Development of quality of care interventions for adult patients on home parenteral nutrition (HPN) with a benign underlying disease using a two-round Delphi approach. Clin Nutr. 2013 Feb;32(1):59-64.

Pironi L, Forbes A, Van Gossum A. Gut. 2012 Jan;61(1): author reply 167.

Pironi L, Joly F, Forbes A, Colomb V, Lyszkowska M, Baxter J, Gabe S,Hébuterne X, Gambarara M, Gottrand F, Cuerda C, Thul P, Messing B, Goulet O, Staun M, Van Gossum A; Home Artificial Nutrition & Chronic Intestinal Failure Working Group of the European Society for Clinical Nutrition and Metabolism (ESPEN). Long-term follow-up of patients on home parenteral nutrition in Europe: implications for intestinal transplantation. Gut. 2011 Jan;60(1):17-25.

Pironi L, Staun M, Van Gossum A. Intestinal transplantation. N Engl J Med.2009 Dec 10;361(24):2388-9; author reply 2389.

Staun M, Pironi L, Bozzetti F, Baxter J, Forbes A, Joly F, Jeppesen P, Moreno J, Hébuterne X, Pertkiewicz M, Mühlebach S, Shenkin A, Van Gossum A; ESPEN. ESPEN Guidelines on Parenteral Nutrition: home parenteral nutrition (HPN) in adult patients. Clin Nutr. 2009 Aug;28(4):467-79.

Pironi L, Forbes A, Joly F, Colomb V, Lyszkowska M, Van Gossum A, Baxter J,Thul P, Hébuterne X, Gambarara M, Gottrand F, Moreno Villares JM, Messing B,Goulet O, Staun M; Home Artificial Nutrition Working Group of the European Society for Clinical Nutrition and Metabolism (ESPEN). Survival of patients identified as candidates for intestinal transplantation: a 3-year prospective follow-up. Gastroenterology. 2008 Jul;135(1):61-71.

Staun M, Hebuterne X, Shaffer J, Haderslev KV, Bozzetti F, Pertkiewicz M, Micklewright A, Moreno J, Thul P, Pironi L. Management of intestinal failure in Europe. A questionnaire based study on the incidence and management. Dyn Med. 2007 Jul 4;6:7.

Pironi L, Hébuterne X, Van Gossum A, Messing B, Lyszkowska M, Colomb V, Forbes A, Micklewright A, Villares JM, Thul P, Bozzetti F, Goulet O, Staun M. Candidates for intestinal transplantation: a multicenter survey in Europe. Am J Gastroenterol. 2006 Jul;101(7):1633-43.

Wengler A, Micklewright A, Hébuterne X, Bozzetti F, Pertkiewicz M, Moreno J, Pironi L, Thul P, Van Gossum A, Staun M; ESPEN-Home Artificial Nutrition working group. Monitoring of patients on home parenteral nutrition (HPN) in Europe: a questionnaire based study on monitoring practice in 42 centres. Clin Nutr. 2006 Aug;25(4):693-700.

Pironi L, Tjellesen L, De Francesco A, Pertkiewicz M, Morselli Labate AM,Staun M, Przedlacki J, Lezo A, Orlandoni P, Pasanisi F; ESPEN-home artificial nutrition working group. Bone mineral density in patients on home parenteral nutrition: a follow-up study. Clin Nutr. 2004 Dec;23(6):1288-302.

Hébuterne X, Bozzetti F, Moreno Villares JM, Pertkiewicz M, Shaffer J, Staun M, Thul P, Van Gossum A; ESPEN-Home Artificial Nutrition Working Group. Home enteral nutrition in adults: a European multicentre survey. Clin Nutr 2003;22:261-6

Bozzetti F, Mariani L, Bertinet DB, Chiavenna G, Crose N, De Cicco M, Gigli G, Micklewright A, Moreno Villares JM, Orban A, Pertkiewicz M, Pironi L, Vilas MP, Prins F, Thul P. Central venous catheter complications in 447 patients on home parenteral nutrition: an analysis of over 100.000 catheter days. Clin Nutr. 2002 Dec;21(6):475-85.

Pironi L, Labate AM, Pertkiewicz M, Przedlacki J, Tjellesen L, Staun M, De Francesco A, Gallenca P, Guglielmi FW, Van Gossum A, Orlandoni P, Contaldo F,Villares JM; Espen-Home Artificial Nutrition Working Group. Prevalence of bone disease in patients on home parenteral nutrition. Clin Nutr. 2002 Aug;21(4):289-9.

Van Gossum A, Vahedi K, Abdel-Malik, Staun M, Pertkiewicz M, Shaffer J,Hébuterne X, Beau P, Guédon C, Schmit A, Tjellesen L, Messing B, Forbes A. Clinical, social and rehabilitation status of long-term home parenteral nutrition patients: results of a European multicentre survey. Clin Nutr 2001;20:205-10

Moreno JM, Shaffer J, Staun M, Hébuterne X, Bozzetti F, Pertkiewicz M, Thul P, Van Gossum A. Survey on legislation and funding of Home Artificial Nutrition in different european countries. Clin Nutr 2001;20:117-23

Van Gossum A, Bakker H, Bozzetti F, Staun M, Leon-Sanz M, Hébuterne X, Pertkiewicz M, Shaffer J, Thul P. Home parenteral nutrition in adults: A european multicentre survey in 1997. ESPEN-Home Artificial Nutrition Working Group. Clin Nutr 1999;18:135-40

Van Gossum A. et al. Home Parenteral Nutrition (HPN) in children. A multicentre survey in Europe in 1997. Clin Nutr 1998;17(suppl. 1):49

Shaffer J. et al. A European survey on management of metabolic complications in home parenteral nutrition.  Clin Nutr 1997; 16 (suppl. 2):73

Van Gossum A, Bakker H, De Francesco A, Ladefoged K, Leon-Sanz M, Messing B, Pironi L, Pertkiewicz M, Shaffer J, Thul P, Wood S. ESPEN-Home Artificial Nutrition Working Group.  Home parenteral nutrition in adults: a multicentre survey in Europe in 1993. Clin Nutr. 1996 Apr;15(2):53-9.

Studies in progress      For more information and participation, please contact the study coordinator. Taurolidine for the prevention of CVC-infection (Coordinator: G. Wanten) Post bariatric surgery:a new indication for Home Parenteral Nutrition (Coordinator: A. Van Gossum) Clinical classification of adult patients with chronic intestinal failure: an international cross-sectional survey to compare the home parenteral nutrition activity among countries (Coordinator: L. Pironi) Guidelines on Chronic Intestinal Failure (HAN&CIF group) ESPEN Registry on Chronic Intestinal Failure (HAN&CIF group) Clinical classification of adult patients with chronic intestinal failure: An international cross-sectional survey to compare the home parenteral nutrition activity among countries Protocol HAN & CIF Working Group     Chairman HAN & CIF Working Group Chairman Prof. Loris PIRONI Center for Chronic Intestinal Failure, St. Orsola-Malpighi Hospital University of Bologna Via Massarenti, 9 40138 Bologna, Italy TEL/FAX: +39 - 051 - 6363073   Members Dr. Jann Arends Gastroenterology and Nutrition KTB Tumor Biology Center at Albert-Ludwigs-University Breisacher Strasse 117 79106 Freiburg, Germany tel +49 - 761 - 206.1803 / .1890 fax +49 - 761 - 206.1892 Dr. Cristina CUERDA Nutrition Unit Hospital General Universitario Gregorio Marañón c/ Doctor Esquerdo 46 28007 Madrid, Spain FAX: +34 915868018 Dr. Francisca JOLY Department of Gastroenterology and Nutritional Support Approved centre for intestinal failure Hôpital Beaujon 100 Bd General Leclerc 92110 Clichy, France Dr. Simon Lal Simon.Lal@srft.nhs.uk Intestinal Failure Unit Salford Royal Foundation Trust Salford U.K. M68HD TEL: +41 01612065147 ____________________ Dr. Michael STAUN Rigshospitalet Department of Medical Gastroenterology CA2121 Blegdamsvej 9 DK-2100 Copenhagen, Denmark TEL: +45 3545 2157 FAX: +45 3545 2913 Dr. Kinga Szczepanek Department of Anaesthesiology and Intensive Care Medicine Jagiellonian University Collegium Medicum Krakow Poland TEL: +48 608 515 670 Prof. Andrè Van Gossum Université Libre de Bruxelles Erasme Hospital Gastroenterology Department Route de Lennik 808  1070 BRUXELLES  Belgium  Tel.: +32 2 555 4900  Fax: +32 2 555 4901  Dr. Geert WANTEN Intestinal Failure Unit Department of Gastroenterology and Hepatology Radboud University Nijmegen Medical Centre P.O. Box 9101 6500 HB Nijmegen, The Netherlands Phone: ++31 24 3614760 Fax: ++31 24 3540103